Welcome!

The Lupus Association of Tasmania is a self-funded non-profit organisation served by volunteers.

We are committed to understanding and supporting people with Lupus, Sjögren’s, Scleroderma, Fibromyalgia or any auto-immune disease in the following ways:

By educating and informing patients and their families.
By providing support in the form of encouragement and service.
By promoting and supporting research designed to discover the cause of, and a cure for, lupus and related auto-immune diseases.
To read our Patron and President’s messages, please click here
For information on Lupus, Sjögren’s syndrome, Fibromyalgia syndrome, and Scleroderma, please click here.
To make a donation and support your local organisation and research, please click here.
To contact the Lupus Association of Tasmania, please click here.

Established 1st December, 1999.

United By Our Disease - We Salute Them!

hartas We have been most fortunate to have had two outstanding couples devote an extraordinary amount of their lives to im- proving the outcomes for people with LUPUS. On behalf of all present and past members I wish to thank Bruce and Col- leen McCormack and Vic and Denise Hartas for their out- standing work in building the Lupus Association of Tasmania.

bruce colleen During their commitment over the years, individually and collectively they have worked on all aspects of our organiza- tion. The skill they have brought to all their roles is far reaching and enormous; President, secretary, treasurer, com- mittee member, regional co-ordinator, mentor, educator, publicists, conference and Lupus awareness week organis- ers, fundraisers research co-ordinator, political advocate, li- brary and information gather and dispenser, caterers (dishwashers), and general organisers extraordinaire.

Having made this list I smile as I think that I am sure they could add a few more roles that I might have overlooked. They will certainly be missed and our supporters have rallied to fill the gap. We wish them all better health and time to enjoy retirement. Whenever you can we will still welcome your input and participation.

We wish them the very best.

They will be our friends for ever. President: Lois Beckwith

Details: Category: Lupus Tasmania; Published: 10 April 2017; Hits: 2191

Facebook for Lupus Tasmania

Facebook - Are you involved ? Some people love it, and others well .... don't love it!

Join us at https://www.facebook.com/lupustasmania

Details: Category: Lupus Tasmania; Published: 10 April 2017; Hits: 2820

Message from our Patron

It is my honour to serve the Lupus Association of Tasmania as its patron.

Details: Category: Messages; Published: 11 December 2014; Hits: 3577

Report from the North West March 2017

Our first Lupus gathering was only small but was great all the same. We met at the Fuschia Farm on Lillico straight as one of our newest members lives close by to this/her beautiful family owned business.
Always a great feed, along with fabulous company always makes the fuschia farm a favourite place to visit.
Due to the members present at the March get together, many were unable to attend in April so we voted to skip April and make a catch up day in May. We have encouraged members past and present to bring along with any new members who would like to have a chat and a chin wag.
We are already starting to build capacity with 2 new members at the March luncheon with the possibility of a few more at the May lunch.
I am looking forward to rebuilding the North West Support Group so we all have people we can connect with and call when things get us down.

Kind regards
Leanne - Coordinator

Details: Category: Lupus Tasmania; Published: 06 April 2017; Hits: 2108

News for 2017

Lupus Tasmania is back on track

Have a look at the Diary - http://www.lupustasmania.org.au/index.php/diary or use the menu above

Details: Category: Lupus Tasmania; Published: 06 April 2017; Hits: 2849

Power bill help for Tasmanians suffering certain medical conditions

Tasmanians with medical conditions requiring them to keep a certain temperature in their home can now receive a concession to help with power costs.

The concession is an expansion of the existing Medical Cooling concession and will be a fixed rate for each day, totalling $137 a year.

General information on concessions is available here:
http://www.auroraenergy.com.au/your-home/bills-and-payments/discounts-and-concessions

And the form is available here:

Medical Cooling Concession

Details: Category: Lupus Tasmania; Published: 23 June 2015; Hits: 2883

Page 2 of 2

The Lupus Tasmania Newsletter is published quarterly.

Please find below recent newsletters.

There are about 30 books, video’s and tapes that are not required to stay on the reference shelves at the library any more.
If any member is interested in having one or more books to keep please contact our librarian, Joan on 6344 9322

1.We All Can Be Doctors Of Common sense.
A Guide To Good Health And Well Being.
(Elizabeth Bowden) (Landin Press, Adelaide)
(Copyright: 1988) (ISBN: 09589059 - 3 - 2)

2. You Can Heal Your Life. (Louise L Hay)
(Specialist Publications, Concord, N.S.W.)
(Copyright: 1984) (ISBN: 0 - 9588973 - 1- X)

3. Lupus. (The Body Against Itself)
(Sheldon Paul Blau, M.D. & Dodie Shultz)
(Doubleday & Company, Inc., New York) (X2)
(Copyright: 1977) (ISBN: 0 - 385 - 04562 - X)

4. Lupus Erythematosus. Handbook For Nurses.
(Terri Nass, R.N.) (Lupus Society Of Wisconsin/NC.)
(Copyright: 1985 - 2nd Edition)

5. The Golden Window. A Compelling Human-Inter Story.
(Len Staples). (L.J. Staples Family Trust -Raratoto, Cook Islands.
(Copyright: 1981) (ISBN - 0 - 9593678 - 0 - 2)

6. Victorian Lupus Association. (Fonnie Baird)
(Ringwood Litho) (Copyright: 1983 -84) (X3)

7. How It Feels To Fight For Your Life.
(Jill Krementz) (Little, Brown And Company)
(Copyright: 1989) ISBN: 0 - 316 50364 - 9)

8. Something In Common.
(Loma Nahrung and Marianne White) (Cygnet Books)
(Copyright: 1981) (ISBN: 0 - 85564 - 204 - 1)
(Sean M. Hogan, A.C.S.W.) (1977).

9. Lonely Husbands, Lonely Wives.
(Rekindling Intamacy In Every Marriage)
(Dennis Rainey) (Word Publishing - USA)
(Copyright: 1989) (ISBN: 0 - 8499 - 0701 - 2)

10. The Chronic Pain Control Workbook.
(Ellen Mohr Catalano, M.A.)
(New Harbinger Publications, Inc.)
(Copyright : 1987) (ISBN: 0 - 934986 - 45 - 2)

11. The Relaxation & Stress Reduction Workbook.
(Martha Davis, Ph.D., Elizabeth Robbins Eshselman,
Matthew McKay, Ph.D., (Copyright: 1982)
(New Harbinger Publications) (ISBN: 0 - 934986 - 04)

12. Thoughts & Feelings. The Art Of Cognitive Stress Intervention.
(Matthew McKay, Ph.D.; Martha Davia, Ph.D.; Patrick Fanning.)
(Copyright: 1981.) (New Harbinger Publications)
(ISBN: 0 - 934986 - 03 - 7)

Video: Lupus Awareness. 1987.

Tape: Lectures On SLE By:- Wayne Kerrison, (Pathologist),
and Dr. Andrew McClaine-Cross, (Rheumatologist),
(March 6, 1982)

13. The Sun Is My Enemy.
(Henrietta Aladjem) (Beacon Press)
(Copyright: 1972) (ISBN: 0 8070 - 2171 -7)

14. Coping With Fibromyalgia.
(Beth Ediger) (L.R.H Publications, Canada)
(Copyright: 1991)

15. Lupus - A Wolf In Sheep's Clothing.
(Keren Hardy). (Collins Dove.) (X3)
(Copyright: 1985) (Reprinted - 1990) (ISBN: 0 - 85924 -369 9).

16. Victorian Lupus Association - Lupus Information Folder.
(Forward by: Fonnie Baird - President, Victoria Lupus
Association. (1983 - 84)

17. The Yeast Connection - A Medical Breakthrough.
(William G. Crook, M.D.) (Professional Books).
(1st. Edition - 1983/1984) (2nd. Edition - 1984/1985/1986)
(3rd. Edition - 1986). (ISBN: 0 - 933478 - 11 - 9)

18. A Home Reference: Your Thyroid.
(Lawrence C. Wood, M.D., F.A.C.P.)
(David S. Cooper, M.D., F.A,C.P.)
(E Chester Ridgway, M.D., F.A.C.P.)
(Ballentine Books). (Copyright - 1982)
(ISBN: 0 - 345 - 46649 - 7).

19. The Joy Of Stress.
(Dr. Peter Hanson). (Pam Book - London; Sydney; Auckland).
(1st. Publication - 1986) (ISBN: 0 - 330 - 30369 - 4).

20. A Primer On Lupus Erythematosus.
(John R. Haserick, M.D.; Robert E. Kellum, M.D.)
(The Pilot, Inc.) (Copyright - 1973)

21. Lupus Erythematosus. A Handbook For Physicians, Patients &
Their Families. (Ronald J. Carr, M.D., Ph.D.)
(Copyright: - 1986) (ISBN: 0-9608660 - 2 - 7).

22. The Monster Under The Bed. Child Rearing When A Parent Is
Chronically Ill. (Barbara Butler). (Copyright: 1990)
(Lupus Foundation Of America, Inc.) (X2)

23 Lupus Erythematosus - Lupus And You. A Guide For
Patients. (St. Louis Park Medical Centre Research (X2)
Foundation - 1972.

24. Coping With Depression In A Chronic Illness.
(Sean M. Hogan, A.C.S.W.) (1977).

25. Scleroderma - Problems And Solutions.
(1981) (Scleroderma Foundation Of Victoria)

26. Lupus - The Disease With 1000 Faces.
(1991 - 2nd Edition) (Copyright - 1990)
(Lupus - Canada.) (Jean-Luc Senical, M.D., FRCPC.)

27. Meeting The Challenge: A Young Persons' Guide To Living
With Lupus. (Amy J. Neil, M.S.) (1990)
(Arthritis Foundation) (Published - U.S.A.)

28. Tape: Lupus And The Kidneys.
(Dr. Nick Oliver - May 14, 1983.)

29. Understanding Sjogren's Syndrome.
(Sue Dauphin) (Copyright: 1993)
(Published by: Pixel Press)
(ISBN: 0 - 96 - 20354 -0 -8)

30. Learning And Living With Scleroderma and Lupus.
(The Scleroderma/Lupus Supported Society Inc.)
Published by: The Scleroderma/Lupus Support (X2)
Society Inc., Aust.) (Copyright: 1992)
(ISBN: 0 -646 - 07669 -8)