Lupus Association of Tasmania Inc.
The Lupus Association of Tasmania Inc.

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Lupus Links

More links are being added regularly as sites are verified for their appropriateness. Please visit often. If you have a site you have found informative and useful please email us for inclusion on this page.

  • Web Link Autoimmune Resource & Research Centre - ARRC

    AutoImmune.org.au

    Autoimmune Resource & Research Centre - ARRC

    Level 2 Pathology North Bldg, John Hunter Hospital, Locked Bag 1, Hunter Region MC 2310 Australia

    P +61 249 214095    F +61 249 855347    M 0412001229    E  HNELHD-ARRC@health.nsw.gov.au

    W www.autoimmune.org.au  |CFN 22223  | Quality of life through education, support & research

      www.facebook.com/AutoimmuneAustralia     autoimmune4u    @autoimmuneaust1

  • Web Link World Medicine Ophthalmolgy

    This site covers Sjögren’s Syndrome, and many if not all problems caused to the eyes by autoimmune diseases. Has a wealth of links to other eye disease related sites.

     

  • Web Link Doctors 4U

    Looking for a Doctor? A Chemist or Pharmacy?A Gymnasium – Health Fund – Health Retreat – Hospital – Medical Equipment – or Retirement Home??

    Find them here with Doctors4U® Australia’s premium user friendly Internet Directory reaching over 10 million people Australia wide and 474 million people Worldwide.

     

  • Web Link FIBROHUGS

    Complete support for FMS and CFS and all related illnesses such as MS, IBS, Lupus, etc.

     

  • Web Link MY DR.

    An excellent Australian site from MIMS,Ncovering vast amounts of health information.

     

  • Web Link BUT YOU DON’T LOOK SICK?

    This young woman explains so well how someone with lupus feels, it is uncanny. It is so simple and easy to understand. There is also other good information on the site.

     

  • Web Link LUPUS FOUNDATION OF AMERICA

    This site provides extensive information about Lupus. It also has a health forum where you can interact with other Lupus patients and medical professionals. There are many links – some to online chat rooms too.

     

  • Web Link AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION INC.

    This site has information on some 60 autoimmune related diseases.

     

  • Web Link THE LUPUS SITE (UK)

    This site gives information on just about every condition that is connected with lupus. This site has been set up by a sufferer, and it is packed full of information.

     

  • Web Link SJOGREN’S SYNDROME FOUNDATION

    A good site (in the US) for Sjogren’s sufferers which has much information for patients, the latest on research, and news items, and a good list of further reading together with other SS links. They also produce an excellent newsletter.

     

  • Web Link NATIONAL FIBROMYALGIA ASSOCIATION

    A very informative site to help people with fibromyalgia and overlapping syndromes.

     

  • Web Link BRITISH SJÖGREN’S SYNDROME ASSOCIATION

    The British Sjögren’s Syndrome Association is a charitable organisation that aims to educate people about Sjogren’s Syndrome, raise awareness surrounding its existence and symptoms, and support research into its cause and treatment.

     

  • Web Link MYOSITIS ASSOCIATION OF AMERICA

    Contains good descriptions of various inflammatory myopathies and diagnosis criteria. Has Doctor Q. and A. page and a bulletin board for discussions.

     

  • Web Link SCLERODERMA FOUNDATION

    Excellent site for patient information, news on research, a chat room, and many links to scleroderma and overlapping syndromes, and much more.

     

  • Web Link ARTHRITIS FOUNDATION

    Covers all types of Arthritis, with plenty of fact sheets and information on how to ease the effect of arthritis on daily life.

     

  • Web Link SJOGREN’S WORLD

    A worldwide Internet Community created for those who have Sjogren’s Syndrome. It is a place for all to meet and share experiences and knowledge with others who live with Sjogren’s in order to improve quality of life. The loneliness and isolation that often accompanies living with this *rare* disease need not be.

     

  • Web Link SJOGREN’S SYNDROME NEW ZEALAND

    An unofficial unincorporated group operated for the benefit of Sjogren’s Syndrome sufferers in New Zealand, Australia and elswhere.

     

  • Web Link LUPUS ASSOCIATION OF NEW SOUTH WALES (AUSTRALIA)

    The Association is a community based counselling and advocacy service with over 1100 members throughout NSW, ACT and Northern Territory, and a permanently staffed office at North Ryde in Sydney, NSW. 

     

  • Web Link THE LUPUS GROUP OF WESTERN AUSTRALIA

    The Group provides support and education to people with lupus, their carers and the medical profession, while promoting in the broader community an understanding of lupus and its impact on those directly and indirectly involved.

     

  • Web Link LUPUS AUSTRALIA QLD INC.

    Lupus Australia Queensland became an Incorporated body on 27th May 1994 and a registered Charity on 19th October 1994. We operate as a non-profit charity organisation in the State of Queensland, Australia.

     

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Newsletters

The Lupus Tasmania Newsletter is published quarterly.

Please find below recent newsletters.

  • 2021 -11
  • 2021 - 05
  • 2020 - 11
  • 2020 - 08
  • 2020 - 05
  • 2020 - 03
  • 2019 - 12
  • 2019 - 08
  • 2019 - 02
  • 2018 - 11
  • 2018 Quarter 2
  • 2018 Quarter 1
  • 2017 Quarter 4
  • 2017 Quarter 3
  • 2017 Quarter 2
  • 2017 Quarter 1
  • 2016 Quarter 4
  • 2016 Quarter 1

Books to Give Away

There are about 30 books, video’s and tapes that are not required to stay on the reference shelves at the library any more. 
If any member is interested in having one or more books to keep please contact our librarian, Joan on 6344 9322


1.We All Can Be Doctors Of Common sense.
A Guide To Good Health And Well Being.
(Elizabeth Bowden) (Landin Press, Adelaide)
(Copyright: 1988) (ISBN: 09589059 - 3 - 2)

2. You Can Heal Your Life. (Louise L Hay)
(Specialist Publications, Concord, N.S.W.)
(Copyright: 1984) (ISBN: 0 - 9588973 - 1- X)

3. Lupus. (The Body Against Itself)
(Sheldon Paul Blau, M.D. & Dodie Shultz)
(Doubleday & Company, Inc., New York) (X2)
(Copyright: 1977) (ISBN: 0 - 385 - 04562 - X)

4. Lupus Erythematosus. Handbook For Nurses.
(Terri Nass, R.N.) (Lupus Society Of Wisconsin/NC.)
(Copyright: 1985 - 2nd Edition)

5. The Golden Window. A Compelling Human-Inter Story.
(Len Staples). (L.J. Staples Family Trust -Raratoto, Cook Islands.
(Copyright: 1981) (ISBN - 0 - 9593678 - 0 - 2)

6. Victorian Lupus Association. (Fonnie Baird)
(Ringwood Litho) (Copyright: 1983 -84) (X3)

7. How It Feels To Fight For Your Life.
(Jill Krementz) (Little, Brown And Company)
(Copyright: 1989) ISBN: 0 - 316 50364 - 9)

8. Something In Common.
(Loma Nahrung and Marianne White) (Cygnet Books)
(Copyright: 1981) (ISBN: 0 - 85564 - 204 - 1)
(Sean M. Hogan, A.C.S.W.) (1977).

9. Lonely Husbands, Lonely Wives.
(Rekindling Intamacy In Every Marriage)
(Dennis Rainey) (Word Publishing - USA)
(Copyright: 1989) (ISBN: 0 - 8499 - 0701 - 2)

10. The Chronic Pain Control Workbook.
(Ellen Mohr Catalano, M.A.)
(New Harbinger Publications, Inc.)
(Copyright : 1987) (ISBN: 0 - 934986 - 45 - 2)

11. The Relaxation & Stress Reduction Workbook.
(Martha Davis, Ph.D., Elizabeth Robbins Eshselman,
Matthew McKay, Ph.D., (Copyright: 1982)
(New Harbinger Publications) (ISBN: 0 - 934986 - 04)

12. Thoughts & Feelings. The Art Of Cognitive Stress Intervention.
(Matthew McKay, Ph.D.; Martha Davia, Ph.D.; Patrick Fanning.)
(Copyright: 1981.) (New Harbinger Publications)
(ISBN: 0 - 934986 - 03 - 7)

Video: Lupus Awareness. 1987.

Tape: Lectures On SLE By:- Wayne Kerrison, (Pathologist),
and Dr. Andrew McClaine-Cross, (Rheumatologist),
(March 6, 1982)

13. The Sun Is My Enemy.
(Henrietta Aladjem) (Beacon Press)
(Copyright: 1972) (ISBN: 0 8070 - 2171 -7)

14. Coping With Fibromyalgia.
(Beth Ediger) (L.R.H Publications, Canada)
(Copyright: 1991)

15. Lupus - A Wolf In Sheep's Clothing.
(Keren Hardy). (Collins Dove.) (X3)
(Copyright: 1985) (Reprinted - 1990) (ISBN: 0 - 85924 -369 9).

16. Victorian Lupus Association - Lupus Information Folder.
(Forward by: Fonnie Baird - President, Victoria Lupus
Association. (1983 - 84)

17. The Yeast Connection - A Medical Breakthrough.
(William G. Crook, M.D.) (Professional Books).
(1st. Edition - 1983/1984) (2nd. Edition - 1984/1985/1986)
(3rd. Edition - 1986). (ISBN: 0 - 933478 - 11 - 9)

18. A Home Reference: Your Thyroid.
(Lawrence C. Wood, M.D., F.A.C.P.)
(David S. Cooper, M.D., F.A,C.P.)
(E Chester Ridgway, M.D., F.A.C.P.)
(Ballentine Books). (Copyright - 1982)
(ISBN: 0 - 345 - 46649 - 7).

19. The Joy Of Stress.
(Dr. Peter Hanson). (Pam Book - London; Sydney; Auckland).
(1st. Publication - 1986) (ISBN: 0 - 330 - 30369 - 4).

20. A Primer On Lupus Erythematosus.
(John R. Haserick, M.D.; Robert E. Kellum, M.D.)
(The Pilot, Inc.) (Copyright - 1973)

21. Lupus Erythematosus. A Handbook For Physicians, Patients & 
Their Families. (Ronald J. Carr, M.D., Ph.D.)
(Copyright: - 1986) (ISBN: 0-9608660 - 2 - 7).

22. The Monster Under The Bed. Child Rearing When A Parent Is 
Chronically Ill. (Barbara Butler). (Copyright: 1990)
(Lupus Foundation Of America, Inc.) (X2)

23 Lupus Erythematosus - Lupus And You. A Guide For 
Patients. (St. Louis Park Medical Centre Research (X2)
Foundation - 1972.

24. Coping With Depression In A Chronic Illness.
(Sean M. Hogan, A.C.S.W.) (1977).

25. Scleroderma - Problems And Solutions.
(1981) (Scleroderma Foundation Of Victoria)

26. Lupus - The Disease With 1000 Faces.
(1991 - 2nd Edition) (Copyright - 1990)
(Lupus - Canada.) (Jean-Luc Senical, M.D., FRCPC.)

27. Meeting The Challenge: A Young Persons' Guide To Living
With Lupus. (Amy J. Neil, M.S.) (1990)
(Arthritis Foundation) (Published - U.S.A.)

28. Tape: Lupus And The Kidneys.
(Dr. Nick Oliver - May 14, 1983.)

29. Understanding Sjogren's Syndrome.
(Sue Dauphin) (Copyright: 1993)
(Published by: Pixel Press)
(ISBN: 0 - 96 - 20354 -0 -8)

30. Learning And Living With Scleroderma and Lupus.
(The Scleroderma/Lupus Supported Society Inc.)
Published by: The Scleroderma/Lupus Support (X2)
Society Inc., Aust.) (Copyright: 1992)
(ISBN: 0 -646 - 07669 -8)


DISCLAIMER

The Lupus Association of Tasmania inc. does not recommend or endorse any treatments, procedures or drugs.
Any information is intended to keep you informed and we recommend you discuss any information mentioned with your doctor.

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