Welcome!

The Lupus Association of Tasmania is a self-funded non-profit organisation served by volunteers.

We are committed to understanding and supporting people with Lupus, Sjögren’s, Scleroderma, Fibromyalgia or any auto-immune disease in the following ways:

  • By educating and informing patients and their families.
  • By providing support in the form of encouragement and service.
  • By promoting and supporting research designed to discover the cause of, and a cure for, lupus and related auto-immune diseases. 
  • To read our Patron and President’s messages, please click here
  • For information on Lupus, Sjögren’s syndrome, Fibromyalgia syndrome, and Scleroderma, please click here.
  • To make a donation and support your local organisation and research, please click here.
  • To contact the Lupus Association of Tasmania, please click here.

Established 1st December, 1999.

Northern Support Group
Thursday – 29.11.18 at Kings Meadows Health Centre, Joan Marshall Wing starting at 10.30am. Bring a plate of morning tea to share.

Southern Support Group
Monday – 19.11.18 starting at 12 noon. The address is Mathers House, 108-110 Bathurst Street, Hobart. Please phone/email Heather to confirm your booking before the 19th.

These meetings are the last ones for 2018. Hoping heaps of members and new members can join us at the ‘get together’ meetings to tally up the year.

Our BIG ‘CELEBRATION FOR THE YEAR’ CHRISTMAS lunch (everyone is invited) will be held on 9.12.18 in Launceston at Kings Meadows Health Centre, Joan Marshall Wing at 11:00am

The Lupus Association of Tasmania Inc. now has a Support Group on the West Coast, dedicated to the support and education of people with Lupus, Scleroderma, Fibromyalgia, and all other autoimmune diseases.
We meet at 11am on the first Tuesday of the month in a private area of the Empire Hotel in Queenstown, and you are invited to join us for a relaxing get-together!

Please contact me on 0419724384 for more details.
Barbara Gruner (Coordinator)

There are about 30 books, video’s and tapes that are not required to stay on the reference shelves at the library any more.
If any member is interested in having one or more books to keep please contact our librarian, Joan on 6344 9322


1.We All Can Be Doctors Of Common sense.
A Guide To Good Health And Well Being.
(Elizabeth Bowden) (Landin Press, Adelaide)
(Copyright: 1988) (ISBN: 09589059 - 3 - 2)

View the launch on Southern Cross, at about 13 minutes into this video.

https://www.youtube.com/watch?v=cwdVucgttcA

hartasWe have been most fortunate to have had two outstanding couples devote an extraordinary amount of their lives to im- proving the outcomes for people with LUPUS. On behalf of all present and past members I wish to thank Bruce and Col- leen McCormack and Vic and Denise Hartas for their out- standing work in building the Lupus Association of Tasmania.

bruce colleenDuring their commitment over the years, individually and collectively they have worked on all aspects of our organiza- tion. The skill they have brought to all their roles is far reaching and enormous; President, secretary, treasurer, com- mittee member, regional co-ordinator, mentor, educator, publicists, conference and Lupus awareness week organis- ers, fundraisers research co-ordinator, political advocate, li- brary and information gather and dispenser, caterers (dishwashers), and general organisers extraordinaire.

Having made this list I smile as I think that I am sure they could add a few more roles that I might have overlooked. They will certainly be missed and our supporters have rallied to fill the gap. We wish them all better health and time to enjoy retirement. Whenever you can we will still welcome your input and participation.

We wish them the very best.

They will be our friends for ever. President: Lois Beckwith

Facebook - Are you involved ? Some people love it, and others well .... don't love it!

Join us at https://www.facebook.com/lupustasmania

Our first Lupus gathering was only small but was great all the same. We met at the Fuschia Farm on Lillico straight as one of our newest members lives close by to this/her beautiful family owned business. 
Always a great feed, along with fabulous company always makes the fuschia farm a favourite place to visit. 
Due to the members present at the March get together, many were unable to attend in April so we voted to skip April and make a catch up day in May. We have encouraged members past and present to bring along with any new members who would like to have a chat and a chin wag. 
We are already starting to build capacity with 2 new members at the March luncheon with the possibility of a few more at the May lunch.
I am looking forward to rebuilding the North West Support Group so we all have people we can connect with and call when things get us down.

Kind regards
Leanne - Coordinator

Lupus Tasmania is back on track

Have a look at the Diary - http://www.lupustasmania.org.au/index.php/diary or use the menu above

Tasmanians with medical conditions requiring them to keep a certain temperature in their home can now receive a concession to help with power costs.

The concession is an expansion of the existing Medical Cooling concession and will be a fixed rate for each day, totalling $137 a year.

General information on concessions is available here:
http://www.auroraenergy.com.au/your-home/bills-and-payments/discounts-and-concessions

And the form is available here:

Medical Cooling Concession 

Dr Safa Almaghrabi, PhD research student working with Dr Murray Adams in the School of Health Sciences at the University of Tasmania would like to collect blood samples from people with Lupus as part of her ongoing research (during February – July, 2015).

Safa is investigating what happens to platelets, small fragments derived from larger cells in the bone marrow that stick to each other (aggregate) and are required for normal blood clot formation, when they are exposed to compounds derived from hot chili peppers and related molecules. She has previously published work that describes the inhibitory effects of these compounds on platelets from people without lupus, and now intends to extend this research to investigate people with lupus. Her research will provide information about whether these compounds could potentially be exploited as novel drugs for reducing the abnormal clotting effects of platelets in patients such as those with lupus who experience blood clots and cardiovascular disease, either by themselves and/or with existing treatments.

Event Calendar

The services our Association provide is vital to sufferers of Lupus and other auto-immune diseases. Our website gives up-to date information on Lupus with articles on other auto-immune diseases, including upcoming events and regular support group meetings.

Lending Library

HOW TO LOAN BOOKS

(1) Please choose the book/video/tape you require and enclose fee of $6.00 to cover postage/handling.
(2) Forward to PO Box 639 Launceston TAS 7250
(3) Maximum of two books at any one time.
(4) Please return within 30 days.
(5) There will be fines for overdue items. There will be a replacement charge for books lost.

Name…………………………………………………………………………….

Address…………………………………………………………………………

Post Code………………………………………………………………………

Your email:……….……………………………………………………………

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Fee Enclosed $ ………………………………………………………………

Office Use: Request R’cd………… ………………………………………

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OUR LIBRARY

ANTIPHOSPHOLIPID SYNDROME (HUGHES SYNDROME) – BLOOD

Hughes Syndrome. A Patients Guide To Antiphospholipid Syndrome. Dr. Graham Hughes (Uk). 1996. 21p.

Hughes Syndrome. A Patients Guide. Dr. Graham Hughes (Uk). 2001. 63p. Rev.Ed.

New Positive Options For Antiphospholipid Syndrome (Aps): Self Help And Treatment. Triona Holden. London. 2005 128p. New

Sticky Blood Kay Thackray (Uk). 2002. 118p. New

AUTO-IMMUNE DISORDERS

Automunne Diseases And Their Environmental Triggers. Elaine Moore. USA. 2002. 239p. New

Autoimmune Connection: Essential Information For Women. Rita Baron-Faust. USA. 2002. 410p.

Coping With Prednisone. Eugenia Zukerman & Or. USA. 1997. 208p.

Delicate Balance: Living Successfully With Chronic Illness. Susan M. Wells. USA. 2000. 289pages

Living Well With Autoimmune Disease: What Your Doctor Doesn’t Tell You. Mary Shomon. USA. 530p. 2002 (Thyroid).

Sun Is My Enemy: How To Cope With Chronic Illness. Henrietta Aladjem. USA. 1988. 264 P.

Thriving With Your Autoimmune Disorder: A Woman’s Mind-Body Guide. Simone Ravicz. USA. 2000. 370p. New

Women And Autoimmune Disease: The Mysterious Ways Your Body Betrays Itself. Robert G. Lahita. NY. 2004. 288 P.

What Your Doctor May Not Tell You About Autoimmune Disorders. Stephen Edelson & Or. 2003. 348p.

Your Child With Arthritis: A Family Guide For Caregiving Lori B. Tucker & Ors. USA. 1996. 324p. New

It’s Not Just Growing Pains: A Guide To Childhood Muscle, Bone, Joint Pain, Rheumatic Diseases. T.Lehman. NY. 2004. 416p. New

FIBROMYALGIA

Chronic Fatigue Syndrome: Fibromyalgia And Other Invisible Illness. Katrina Berne. Usa. 2002. 377p.

Coping With Fibromyalgia. Beth Ediger. Canada. 1991. 38 Pages

Fibromyalgia: A Nutritional Approach. William Hennen. Usa. 1999.

Fibromyalgia: A Comprehensive Approach What You Can Do About Chronic Pain. David A Nye. Usa. 1996. New

Fibromyalgia Help Book: Practical Guide To Living Better With Fibromyalgia. Jenny Fransen. Usa. New

Fms (Fibromyalgia): An Overview Of The Fundamental Features Of Fibromyalgia Syndrome.

Fibromyalgia For Dummies. Roland Staud, M.D. N.Y. 2002 336p.

From Fatigued To Fantastic. Jacob Teitelbaum. Usa. 2001 Rev.Ed. 444p.

Treating Fibromyalgia. Beth Ediger. Canada. 1997. 50p.

LUPUS

Challenges Of Lupus – Insight & Hope. Henrietta Aladjem. Usa. 1999. 238 Pages.

Coping With Lupus – A Guide For Living With Lupus For You And Your Family. Robert H. Phillips Phd. 1991. 276 Pages.

Lupus: A Guide For Patients. Dr. Graham Hughes. Uk. 1996 26 Pages.

Lupus: A Wolf In Sheep’s Clothing. Keren Hardy, Victoria. 1985. 80p. (Still Relevant)

Lupus Book: A Guide For Patients And Their Families. Dr. Daniel J. Wallace. Usa. 1995

Lupus Erythematosus: A Handbook For Physicians, Patients And Their Families. 2ed. Ronald Carr. Usa. 1986. 60 P.

Lupus; Everything You Need To Know. Dr. Robert Lahita. Usa. 1998. 224p.

Lupus Handbook For Women. Robin Dibner. Uk. 1995. 176 Pages.

New Hope For People With Lupus: Traditional & Complementary Solutions. Theresa Digeronimo. Usa. 2002. 283p New

Understanding Lupus. Dr. Graham Hughes. Uk. 1996. 100 Pages

Living Well With Lupus: Lectures – Video. Lupus Assoc. Of Tas. 1999.

Living With Lupus: Video. Lupus Assoc Nsw. (Nsw). 1991.

Lupus And The Kidney – Video. Dr Nick Oliver. Tas. 1983.

Peripheral Neuropathy

Numb Toes And Aching Soles: Coping With Peripheral Neuropathy. John Senneff. Usa. 1999.

Numb Toes And Other Woes: More On Peripheral Neuropathy. John Senneff. Usa. 2001. 250p.

Peripheral Neuropathy. What Is It?. Folder. 2003.

Raynaud’s Phenomenon

Living With Raynaud’s. Anne Mawdsley. Uk. 1996. 32 Pages

Scleroderma

Learning & Living With Scleroderma (Nsw). 1992. 52 Pages.

Scleroderma: A New Role For Patients And Families. Michael Brown. La. 2002. 140p. New.

Scleroderma: An Essential Guide For The Newly Diagnosed. Karen Gottesman. Ny. 2003. 248p. New.

Scleroderma Book, A Guide For Patients & Families. Maureen Mayes Md. Usa. 1999. 182p.

Scleroderma – Video Lecture. Scleroderma/Lupus Support Group, Nsw, 2000.

Sjögren’s Syndrome

Body Out Of Balance: Understanding & Treating Sjögren’s Syndrome. Ruth Fremes. Usa. 2002. New

New Sjögren’s Syndrome Handbook. Carsons, S & Harris, E. Ny. 1998. 230p.

Sjögren’s Syndrome Survival Guide. Teri P.Rumph. Usa. 2003. 235 Pages.

Sjögren’s Syndrome: The Sneaky Arthritis. Sue Dauphin. Usa. 1988. 159 P.

Sjögren’s Seminar: Set Of 3 Tapes Lupus Nsw Aus. 2003 Tape A – Depression, Stress & Sjögren’s. New

Sjögren’s Seminar: Set Of 3 Tapes Lupus Nsw Aus. 2003 Tape B – Unravelling The Mysteries Of Ss & Ss And Your Eyes. New

Sjögren’s Seminar: Set Of 3 Tapes Lupus Nsw Aus. 2003 Tape C – Dry Mouth And Implications For People With Ss. New

Understanding Sjogren’s Syndrome. Sue Dauphin. Usa. 1993. 244 Pages

Thyroid – Hyperthyroidism & Hypothyroidism (Hashimoto’s & Graves’ – See Also Auto-Immune Disorders)

Living Well With Hypothyroidism Rev.Ed: What Your Doctor Doesn’t Tell You. Mary Shoman. Uk. 2003. 587p. New

Living Well With Grave’s Disease And Hyperthyroidism: What Your Doc. Mary Shoman. Ny. 2005. 427p. New

Thyroid Solution, A Revolutionary Mind-Body Program. Ridha Arem, M.D. Usa. 1999. 389p. New

Thyroid Balance: Traditional And Alternative Methods For Treating Thyroid. Glen S Rothfeld. Usa. 2003. 306p. (2 Copies) New

Your Thyroid: A Home Reference – Discover The Facts. Lawrence Wood. Ny. 2006. 299p. New

Other

Joy Of Stress. Dr Peter Hansen. Uk. 1988.

Monster Under The Bed: Child Rearing When A Parent Is Chronically Ill. Barbara Butler. Usa. 1989.

What Your Doctor May Not Tell You About Menopause. John E.Lee, M.D. Usa. 1996. 372 Pages.

Yeast Connection: 3rd Ed. Wm G. Crook. Usa. 1986. 434 Pages

Aligning The Body: Total Breathing (Video). Arthritis Aust. 2001

Anxiety And Stress (Video). J.S.W.Tooth. Tas. 1983

Freedom To Move (Video). Arthritis Aust. 2001

We hold a large stock of fact sheets on specific areas of the body affected by auto-immune diseases. If you would like specific information in regard to a personal problem or area of your disease, contact The Secretary on 03 6331 9940

For more information, email us. Please click here

 

Support Us

LUPUS TAS MEMBERSHIP

Membership is our main continuing source of income

Association members receive a quarterly newsletter and have information available to them on specific aspects of lupus and related autoimmune diseases, together with excellent up-to-date books and some videos for hire via the Association’s library. The Association also runs various support groups in the South, North and North-West of the state.

Join now and receive a free information pack. Your support is vital to lupus & autoimmune disease awareness.

Membership is $15

Lupus Tas New-Renewal Membership Form

NB - Please post this to 

The Secretary
PO Box 639
Launceston
Tas 7250

MAKE A DONATION TO LUPUS TAS

Please donate directly to the Lupus Association of Tasmania Inc Research Fund - via this address:

 

Contact Us

Postal Address

The Secretary
PO Box 639
Launceston
Tas 7250

Email Address

This email address is being protected from spambots. You need JavaScript enabled to view it.

About Us

ABOUT TASMANIA

With more than 30 per cent of Tasmania listed as a World Heritage area, this is official recognition that it is one of the planet’s great natural treasures. Tasmania has Australia’s last great wild river system, and its deepest lake, and mountain ranges which date back 100 million years.

Tasmanian rainforests contain some of the world’s oldest living things – Huon pines which have been growing for 2000 years. The compact diversity of Tasmania is a great contrast to the rest of Australia.

ABOUT THE LUPUS ASSOCIATION OF TASMANIA, INC.

The Lupus Association of Tasmania covers the island of Tasmania and its 19 surrounding islands with an area of 68,000 square kilometres and with a population of approximately 471,900.

The Lupus Association of Tasmania is a non-profit organization served by volunteers.
Our aim is to serve those people afflicted with lupus or ANY auto-immune disease in the following ways:-

  • By educating and informing patients and their families.
  • By providing support in the form of encouragement and service.
  • By promoting and supporting research designed to discover the cause of, and a cure for, lupus and related auto-immune diseases.

Membership is our main continuing source of income together with an annual raffle, during October, Lupus Awareness Month. We receive no State or Federal Government support. From time to time small groups or clubs assist with our expenses by way of donations.

We urge all enquirers to join our Association and receive our quarterly newsletter which contains up-to-date medical and research information. It also contains dates of our quarterly general meeting and our monthly support group gatherings for members and public who suffer from ANY auto-immune disease – check our ‘Upcoming Events‘ page for details.

We have a large up-to-date library for members, and provide information packs to new members.

If a sufferer, or a carer or a member of the family, just feels the need to chat, we are only a ‘phone call away.

PRIVACY ACT

New amendments to the Commonwealth Privacy Amendment (Private sector) Act 2000 came into effect on 21 December, 2001. The Lupus Association of Tasmania recognizes that your privacy is important and is committed to protecting your personal information. The Association is taking a number of steps to ensure your privacy and personal information is protected in accordance with the Act.

Your personal information is collected to enable us to maintain an up-to-date membership database and target our services in the best interests of our members. It may also be used to gather, aggregate and report statistical information.

You have a right to gain access to your personal information held by the Association and have it corrected if necessary.

Third parties:

All persons handling your personal information in the course of administering the Association and providing services to our members will be bound by confidentiality. Your personal information will not be shared with other third parties, without your consent.

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