Welcome!

The Lupus Association of Tasmania is a self-funded non-profit organisation served by volunteers.

We are committed to understanding and supporting people with Lupus, Sjögren’s, Scleroderma, Fibromyalgia or any auto-immune disease in the following ways:

  • By educating and informing patients and their families.
  • By providing support in the form of encouragement and service.
  • By promoting and supporting research designed to discover the cause of, and a cure for, lupus and related auto-immune diseases. 
  • To read our Patron and President’s messages, please click here
  • For information on Lupus, Sjögren’s syndrome, Fibromyalgia syndrome, and Scleroderma, please click here.
  • To make a donation and support your local organisation and research, please click here.
  • To contact the Lupus Association of Tasmania, please click here.

Established 1st December, 1999.

Lupus Awareness Week Tasmania

14th- 20th October

WALK FOR LUPUS IN BICHENO

Sunday 20th October 2019

  • Starting at the Bicheno Primary School at 11am and walking to the Blowhole via the walking track. Return journey back includes stopping at Tasmania Coastal Seafoods for lunch.
  • Table will be booked for lunch/drinks from 12pm.
  • Wear anything purple
  • All donations will go to Lupus Tasmania
  • All the public / lupus members are welcome to attend the walk and lunch

If you miss the event, you are welcome to donate to Lupus Tasmania directly by contacting us on 0407 327 780 or

 email -  lThis email address is being protected from spambots. You need JavaScript enabled to view it.

https://www.lupustasmania.org.au https://www.facebook.com/lupustasmania

lupus event 2019

(Click here for a poster)

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this is lupus

Invitation to Members and the Public to the ANNUAL LECTURE


TIME​: 10.00am
DATE:​ Tuesday 15​ th​ October 2019
AT:​ The KINGSMEADOW Community Health Centre
TOPIC:​ Nutrition & its impact on the Immune System
PRESENTED BY:​ Garielle Beardwood (Dietician)

(Click here for a poster)

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Hooray!!! We are still functioning as an Association. Thank you to Lois, Dianne, Murray and Leanne for putting up their hands, also to the commit- tee, Julie, John and Cheryl, we should expect a good year.

I would like to thank Colleen, Bruce, Vic and Denise for supporting me as editor of the Newsletter, over the years. They will be missed greatly as "contact points" for info about the Association. We hope they are taking a well earned "rest".

We also farewelled another stalwart of the Association, Queenie Ennis, who willingly became treasurer when it looked like Bruce would have to take that on as well. We wish Queenie all the best in South Australia and hope she too, has a healthy life in Adelaide where she will be near her family. We are about to sojourn to our warmer climes, so the next newsletter will come from Queensland.

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A public lecture was held during Lupus Awareness Month, featuring leading researcher Dr Marline Squance.
She was featured in the Examiner, the article is here.
Read her PDF here.

 

lois and marline

Lupus Association of Tasmania president Dr Lois Beckwith, with Autoimmune Resource and Research Centre chief executive Dr Marline Squance. Picture: Jessica Willard

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This article was at the ABC - http://www.abc.net.au/radionational/programs/lifematters/scleroderma-:-the-disease-no-one-knows-about/9916250

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Two Southern Tasmanians attended the Lupus AGM and were very pleased that volunteers came forward to form a new committee so the Tasmanian Lupus Association can continue to exist. We greatly appreciate the generous gifts of time and energy that the new committee members have volunteered to the As- sociation.

It was great to see Vic Hartas, who returned from Queensland for the meeting. We were extra pleased to hear of the marked improvement in Denise Hartas‘ health. She escaped her wheel chair and has returned to light house work and gardening.

As a result of the continuation of the Lupus Association, the Southern lunch- eons will continue on the second Wednesday of every second month, at the Esus Café in Elizabeth Street, Hobart at 12 midday. These are simple social support events at which we pay for ourselves. All I need is to know you are coming so I can book the table. Contact us here.

Next Luncheon Dates are June 4th, August 9th, October 11th and December 13th

I am also pleased to share that Allyson Reedy-Mead has agreed to be assistant Southern Co-ordinator. As you know, I have several elderly relatives on the mainland who may call me away from the state at any time, for an extended period.

Having Allyson as a backup is very reassuring for me. Allyson is a university student who will attend luncheons as her classes allow. Thank you Allyson for this generous gift of your time. Every one is welcome at our luncheons ..they can be their family, friends, visitors or carers.

Heather Cowled - Southern Co-ordinator

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It is with great relief our Organisation has managed to secure all the positions needed to successfully operate and continue to offer support and education for people with Lupus.
At the AGM, we were able to gather together a blend of old, recycled expertise of Murray, and the new I will give it a go, Leanne, and the very kind volunteer of Di Whiteley who has past experience as a club secretary and who is new to Lupus.
A group of members, Julie, John, Cheryl, Edna, and Heather also rallied to help as co-ordinators, editor and committee members. Thanks to all we will stay viable and continue the work to improve the lives of people with Lupus.
President
Lois Beckwith
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The Newsletter for May 2017 is available here. Please enjoy !

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The Lupus Association of Tasmania Inc. Committee invites you to attend our annual
CHRISTMAS LUNCH
Where: Joan Marshall Wing – Kingsmeadow Health Centre, Kingsmeadows
Date: 9/12/2018
Time: 11am
Bring: A salad and a dessert to share
RSVP by 5.12.2018 to - This email address is being protected from spambots. You need JavaScript enabled to view it. or 0459 397 942

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Our first gathering was only small but was great all the same. We met at the Fuschia Farm on Lillico straight as one of our newest members lives close by to her beautiful family owned business. Always a great feed, along with fabu- lous company makes the Fuschia Farm a favourite place to visit. Due to members present at the March get together, many were unable to at- tend in April so we voted to skip April and make a catch up day in May. We have encouraged members past and present to bring along any new mem- bers who would like to have a chat and a chin wag. We have chosen to meet the 1st Tuesday of every month (you pay for your meal).

Dates from May to December are:

  • 2nd May—Fuschia Farm, Lillico.
  • 6th June—Shadows, Latrobe.
  • 4th July—Gateway, Devonport.
  • 1st August— Fuschia Farm, Lillico.
  • 5th September—Lucas Hotel, Latrobe.
  • 3rd October - The Scone Shop, Sheffield providing it does not clash with Lupus Awareness Week
  • 7th November— Argosy Motel, East Devonport
  • 5th December— Fuschia Farm—Christmas Lunch for North West Group.

We are already starting to build capacity with 2 new members at the March Luncheon with the possibility of a few more at the May lunch. Looking forward to rebuilding the North West support group so we all have people that we can connect with and call when things get us down.

Leanne Stephens - North West Co-ordinator

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Northern Support Group
Thursday – 29.11.18 at Kings Meadows Health Centre, Joan Marshall Wing starting at 10.30am. Bring a plate of morning tea to share.

Southern Support Group
Monday – 19.11.18 starting at 12 noon. The address is Mathers House, 108-110 Bathurst Street, Hobart. Please phone/email Heather to confirm your booking before the 19th.

These meetings are the last ones for 2018. Hoping heaps of members and new members can join us at the ‘get together’ meetings to tally up the year.

Our BIG ‘CELEBRATION FOR THE YEAR’ CHRISTMAS lunch (everyone is invited) will be held on 9.12.18 in Launceston at Kings Meadows Health Centre, Joan Marshall Wing at 11:00am

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Position Vacant: GROUP COORDINATOR
Our committee would like to have a support group "up and running" down the west coast of Tasmania that will support people with Lupus, Sjögren‘s, Schleroderma, Fibromyalgia and their family, carers and, friend‘s etc.
For more information and a job description please email Lois via Contact Us

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The Lupus Association of Tasmania Inc. now has a Support Group on the West Coast, dedicated to the support and education of people with Lupus, Scleroderma, Fibromyalgia, and all other autoimmune diseases.
We meet at 11am on the first Tuesday of the month in a private area of the Empire Hotel in Queenstown, and you are invited to join us for a relaxing get-together!

Please contact me on 0419724384 for more details.
Barbara Gruner (Coordinator)

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Our group decided to continue meeting on the fourth (4th) Thursday in the month at 10.30 am at the Joan Marshall Wing, Kings Meadows Health Centre to share Morning Tea (bring a small plate of food to share). We will also occa- sionally replace our morning tea catch up with a group lunch at a nearby venue. April 27th will be a morning tea, while the next month May 25th will be a lunch meeting starting at 12.00 at the Kings Meadows Pub. Pay for yourself. Hope to see you all there.

Lois Beckwith -Northern Co-ordinator

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There are about 30 books, video’s and tapes that are not required to stay on the reference shelves at the library any more.
If any member is interested in having one or more books to keep please contact our librarian, Joan on 6344 9322


1.We All Can Be Doctors Of Common sense.
A Guide To Good Health And Well Being.
(Elizabeth Bowden) (Landin Press, Adelaide)
(Copyright: 1988) (ISBN: 09589059 - 3 - 2)

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View the launch on Southern Cross, at about 13 minutes into this video.

https://www.youtube.com/watch?v=cwdVucgttcA

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hartasWe have been most fortunate to have had two outstanding couples devote an extraordinary amount of their lives to im- proving the outcomes for people with LUPUS. On behalf of all present and past members I wish to thank Bruce and Col- leen McCormack and Vic and Denise Hartas for their out- standing work in building the Lupus Association of Tasmania.

bruce colleenDuring their commitment over the years, individually and collectively they have worked on all aspects of our organiza- tion. The skill they have brought to all their roles is far reaching and enormous; President, secretary, treasurer, com- mittee member, regional co-ordinator, mentor, educator, publicists, conference and Lupus awareness week organis- ers, fundraisers research co-ordinator, political advocate, li- brary and information gather and dispenser, caterers (dishwashers), and general organisers extraordinaire.

Having made this list I smile as I think that I am sure they could add a few more roles that I might have overlooked. They will certainly be missed and our supporters have rallied to fill the gap. We wish them all better health and time to enjoy retirement. Whenever you can we will still welcome your input and participation.

We wish them the very best.

They will be our friends for ever. President: Lois Beckwith

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Facebook - Are you involved ? Some people love it, and others well .... don't love it!

Join us at https://www.facebook.com/lupustasmania

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Our first Lupus gathering was only small but was great all the same. We met at the Fuschia Farm on Lillico straight as one of our newest members lives close by to this/her beautiful family owned business. 
Always a great feed, along with fabulous company always makes the fuschia farm a favourite place to visit. 
Due to the members present at the March get together, many were unable to attend in April so we voted to skip April and make a catch up day in May. We have encouraged members past and present to bring along with any new members who would like to have a chat and a chin wag. 
We are already starting to build capacity with 2 new members at the March luncheon with the possibility of a few more at the May lunch.
I am looking forward to rebuilding the North West Support Group so we all have people we can connect with and call when things get us down.

Kind regards
Leanne - Coordinator

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